Ceasefire called on my chondrosarcoma
See this post and more on my chondrosarcoma blog - http://ihavechondrosarcoma.blogspot.co.uk/
I always assumed that a cancer diagnosis meant certain treatment – whether surgical, chemical or radiological. But it seems that I am pretty lucky and don't even need treatment.
I always assumed that a cancer diagnosis meant certain treatment – whether surgical, chemical or radiological. But it seems that I am pretty lucky and don't even need treatment.
My chondrosarcoma prognosis looks pretty good! I have had a few scans (and a biospy) since my last post. Obviously these were worrying – the whole reason the doctors did these tests was to 'stage' my cancer, which essentially means 'check how serious it is'.
I actually enjoyed the biopsy the second time (general anaesthetic is a lot of fun) but I was worried when my parents and I rocked up to the hospital about a month ago. It was time for my follow up and I knew that they had spotted a third chondrosarcoma at the bottom of my shin (because I saw it on the full body scan).
The news started bad – I do indeed have three chondrosarcomas (perhaps four). My hip, femur, shin and maybe ankle all have tumours. "Well, that's a bit shit!" I thought as the consultant calmly told me and my parents what the deal is.
But then, things got considerably better. My biopsies have come back as grade 1 tumours – really slow growing (hopefully not growing) tumours, with very little chance of metastasis.
So no treatment for me just yet. Because of the indolent nature of my tumours. Because of the "life-changing" surgery which will treat it. And because of my level of fitness (I'm getting big-headed now, blabbing about feeling fit and healthy!) – a big multidisciplinary meeting of consultants have decided to keep me under observation.
This is good news as it means I don't have to go through major surgery and I feel 'safe' since regular scans will check for any changes which might indicate the situation becoming more serious. If it does become more serious, then it's always nice to know that treatment options exist.
I hope I never have to write a blog post about my chondrosarcoma again. I hope I can view it less like a horrible monster and more like an annoying mouse that sits underneath the sink in the kitchen, eating the odd loaf of bread or lump of cheese, but basically not doing any harm.
It's been an eye opener to me that some people have to battle cancer, whereas others (and I count myself in this lucky group) can live a normal life with it – an uneasy truce, if you will.
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